Down Syndrome Information

  • Raising a Down Syndrome child?

Great Books We Recommend:

About understanding disabilities:

  • Why I Burned My Book and Other Essays on Disability,

by Paul K. Longmore

  • My Friend Isabelle,

by Eliza Woloson and Bryan Gough

  • Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters,

by Brian Skotko and Susan P. Levine

  • The Sibling Slam Book: What It’s Really Like To Have A Brother Or Sister With Special Needs,

by Don Meyer

  • Down Syndrome Parenting 101: Must-Have Advice for Making Your Life Easier,

by Nathalie Hale

About education:

  • Disability Is Natural: Revolutionary Common Sense for Raising Successful Children with Disabilities,

by Kathie Snow

  • Special Education: A Parent’s Guide for Children’s Success

by Michael T. Bailey

  • Teaching Reading to Children with Down Syndrome: A Guide for Parents and Teachers,

by Patricia Logan Oelwein

  • Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality,

by Terri Couwenhoven

About nutrition:

  • The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles,

by Joan Guthrie Medlen

About motor skills:

  • Fine Motor Skills for Children with Down Syndrome: A Guide for Parents and Professionals,

by Patricia C. Winders

 

Fun informal videos to watch

– Video about raising a baby with Down Syndrome:

https://www.youtube.com/watch?v=0a0V2nn4SWM

– Video about explanation of raising a Down Syndrome child:

https://www.youtube.com/watch?v=ovFrp_F7DWk

– Video about Expression of Language in Down Syndrome:

https://www.youtube.com/watch?v=E09dkCr9_m0

– video about supporting Individuals in the Classroom:

https://www.youtube.com/watch?v=km30n8neLyc

– Video of a Down Syndrome girl who became a cheerleader:

https://www.youtube.com/watch?v=2FeuP-xwAeo

– Video of a Down Syndrome girl who became a gymnast:

https://www.youtube.com/watch?v=dqyo_HwWYm8

– Video of a Down Syndrome man who is independent:

https://www.youtube.com/watch?v=z-GSCDlKylA

Other Useful Resources

– Information about special education law, and advocacy for children with disabilities:

https://www.wrightslaw.com/

– Housing options: https://www.ndss.org/resources/housing-options/

– Community for prenatal support: https://community.babycenter.com/groups/a14515/down_syndrome_pregnancy

– National association: https://www.ndss.org/

– National Down Syndrome Congress: https://www.ndsccenter.org/

– International association: https://www.ds-int.org/

– Band of Angels association: http://www.bandofangels.com/

– Website about prenatal support: http://downsyndromepregnancy.org/

– Down Syndrome adoption network: https://www.ndsan.org/

– Be a Down Syndrome child’s parent: https://www.webmd.com/children/parenting-child-downs-syndrome#1

– Story of a Down Syndrome child’s father: http://noahsdad.com/

– Find a clinic near you: https://www.ndss.org/resources/healthcare-providers/

– Medical treatments and therapies: https://www.nichd.nih.gov/health/topics/down/conditioninfo/treatments

– Organize Your Child’s Health Information: https://cshcn.org/planning-record-keeping/care-organizer-for-parents/

– Institute researching about Down Syndrome:

http://www.ucdenver.edu/academics/colleges/medicalschool/institutes/lindacrnic/Pages/lindacrnic.aspx

– Down Syndrome researches by Stanford Institute: http://dsresearch.stanford.edu/